Executive Director, Nonprofit Leadership & Advocacy

About the Company

Globally recognized association supporting patients with histiocytic disorders

Industry Executive Offices

Type Nonprofit

Founded 1986

Employees 1-10

About the Role

The Company is seeking an Executive Director to lead its global nonprofit organization, which is dedicated to the empowerment and support of patients with histiocytic disorders. The successful candidate will be responsible for the overall leadership and management of the organization, driving strategic initiatives, and serving as the primary spokesperson. This role requires a dynamic advocate with a proven track record in nonprofit leadership, fundraising, and community engagement, as well as a passion for addressing the unique challenges faced by the community. The Executive Director will be expected to lead a comprehensive fundraising strategy, manage financial stewardship, and ensure the organization's programs are of the highest quality and are effectively meeting the needs of the patient and medical communities.

Candidates for the Executive Director position at the company should have a bachelor's degree, with a preference for an emphasis in healthcare management, public health, or nonprofit administration. A minimum of 5 years' of responsible leadership experience in nonprofit management, including success in fundraising, public relations, and program development, is required. The ideal candidate will have a strong background in grant writing, donor relations, and innovative fundraising strategies, as well as excellent communication skills and the ability to inspire and mobilize a team. Experience in advocacy, particularly in the rare disease or chronic health condition space, and a deep commitment to the challenges faced by patients and their families, are highly desirable. The role also demands operational excellence, emotional intelligence, and proficiency in technology and computer applications.

Travel Percent Less than 10%

Functions

CEO/President Non-Profit Management Operations General Management Strategy